A qualitative study of decision-making about the implantation of cardioverter defibrillators and deactivation during end-of-life care

Standing, Holly; Exley, Catherine; Flynn, Darren; Hughes, Julian; Joyce, Kerry; Lobban, Trudie; Lord, Stephen; Matlock, Daniel; McComb, Janet M; Paes, Paul; Thomson, Richard G

doi:10.3310/hsdr04320

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There was discordance between patients and clinicians on information requirements around implantable cardioverter defibrillators, and there were no agreed points across the care pathway to discuss deactivation.

Holly Standing, Catherine Exley, Darren Flynn, Julian Hughes, Kerry Joyce, Trudie Lobban, Stephen Lord, Daniel Matlock, Janet M McComb, Paul Paes & Richard G Thomson.

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Holly Standing ¹, Catherine Exley ¹, Darren Flynn ¹, Julian Hughes ², Kerry Joyce ¹, Trudie Lobban ³, Stephen Lord ⁴, Daniel Matlock ⁵, Janet M McComb ⁴, Paul Paes ⁶, Richard G Thomson ^1,^*

¹ Institute of Health and Society, Newcastle University, Newcastle upon Tyne, UK
² Policy, Ethics and Life Sciences Research Centre, Newcastle University, Newcastle upon Tyne, UK
³ Arrhythmia Alliance: The Heart Rhythm Charity, Stratford-upon-Avon, UK
⁴ Newcastle upon Tyne Hospitals NHS Foundation Trust, Newcastle upon Tyne, UK
⁵ Department of Medicine, University of Colorado School of Medicine, Aurora, CO, USA
⁶ Northumbria Healthcare NHS Foundation Trust, North Shields, UK
^* Corresponding author Email: richard.thomson@newcastle.ac.uk

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