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Jeremy Parr, Lindsay Pennington, Helen Taylor, Dawn Craig, Christopher Morris, Helen McConachie, Jill Cadwgan, Diane Sellers, Morag Andrew, Johanna Smith, Deborah Garland, Elaine McColl, Charlotte Buswell, Julian Thomas & Allan Colver.

Jeremy Parr ^1,2,3,*, Lindsay Pennington ^1,2, Helen Taylor ¹, Dawn Craig ¹, Christopher Morris ⁴, Helen McConachie ¹, Jill Cadwgan ⁵, Diane Sellers ⁶, Morag Andrew ², Johanna Smith ⁷, Deborah Garland ⁸, Elaine McColl ¹, Charlotte Buswell ², Julian Thomas ^1,2, Allan Colver ¹

¹ Population Health Sciences Institute, Newcastle University, Newcastle upon Tyne, UK
² Great North Children’s Hospital, Newcastle upon Tyne Hospitals NHS Foundation Trust, Newcastle upon Tyne, UK
³ Complex Neurodevelopmental Disorders Service, Cumbria, Northumberland, Tyne and Wear NHS Foundation Trust, Newcastle upon Tyne, UK
⁴ Peninsula Childhood Disability Research Unit (PenCRU), Institute of Health Research, University of Exeter Medical School, University of Exeter, Exeter, UK
⁵ Evelina London Children’s Hospital, Guy’s and St Thomas’ NHS Foundation Trust, King’s Health Partners, London, UK
⁶ Sussex Community NHS Foundation Trust, Chailey Clinical Services, Lewes, UK
⁷ Patient and Public Involvement, Newcastle University, Newcastle upon Tyne, UK
⁸ National Autistic Society, London, UK
^* Corresponding author Email: Jeremy.parr@ncl.ac.uk

Declared competing interests of authors: Dawn Craig is a member of the National Institute for Health Research (NIHR) Health Services and Delivery Research programme’s Prioritisation Committee (Researcher led) (2018 to present). Diane Sellers received a research grant from Nutricia Advanced Medical Nutrition UK (Wiltshire, UK) from 2017 to 2018, honorarium payments from Nutricia Advanced Medical Nutrition UK from 2015 to 2019 and an honorarium payment from Nutricia Advanced Medical Nutrition UK in 2018. Morag Andrew received fees from Nutricia Advanced Medical Nutrition UK to attend a conference in which she was presenting industry partner research work and lecture fees/symposium presentation fees from Nutricia Advanced Medical Nutrition UK and Nestlé SA (Vevey, Switzerland). Elaine McColl was a member of the NIHR Journals Library Editorial Group from 2013 to 2016, and was an editor for the NIHR Programme Grants for Applied Research series from 2008 to 2016, with a fee paid to her employing organisation. Allan Colver sat on the priority setting panel of the NIHR Health Technology Assessment Maternal and Child Health Research committee from 2013 to 2017. Jill Cadwgan reports personal fees from Novartis Pharmaceuticals (Basel, Switzerland) and Ispen Pharmaceuticals (Paris, France).