Thinking ahead about medical treatments in advanced illness: a qualitative study of barriers and enablers in end-of-life care planning with patients and families from ethnically diverse backgrounds

Islam, Zoebia; Pollock, Kristian; Patterson, Anne; Hanjari, Matilda; Wallace, Louise; Mururajani, Irfhan; Conroy, Simon; Faull, Christina

doi:10.3310/JVFW4781

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Zoebia Islam , Kristian Pollock , Anne Patterson , Matilda Hanjari , Louise Wallace , Irfhan Mururajani , Simon Conroy & Christina Faull .

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Zoebia Islam ^1,^*, Kristian Pollock ², Anne Patterson ¹, Matilda Hanjari ¹, Louise Wallace ³, Irfhan Mururajani ¹, Simon Conroy ⁴, Christina Faull ^1,⁵

¹ Leicestershire and Rutland Organisation for the Relief of Suffering (LOROS) Hospice, Leicester, UK
² School of Health Sciences, University of Nottingham, Nottingham, UK
³ Faculty of Wellbeing, Education and Language Studies, The Open University, Milton Keynes, UK
⁴ Department of Health Sciences, University of Leicester, Leicester, UK
⁵ University Hospitals of Leicester NHS Trust, Leicester,
^* Corresponding author Email: ZoebiaIslam@loros.co.uk

Disclosure of interests

Full disclosure of interests: Completed ICMJE forms for all authors, including all related interests, are available in the toolkit on the NIHR Journals Library report publication page at https://doi.org/10.3310/JVFW4781.

Primary conflicts of interest: Louise Wallace was member of the DH Service Delivery and Organization Evaluations Panel (2009-11), the DH NIHR Health Services & Research Development Panel (2012-13), the HS&DR Researcher Lead Panel (2013-16) and the DHSC Health and Social Care Delivery Panel-(Seacole) (2019-22).

Disclaimer: This report contains transcripts of interviews conducted in the course of the research and contains language that may offend some readers.

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