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This study found a lack of good-quality evidence for many of the interventions currently in use and no evidence of experiences of implementing interventions for children with non-spinal cord pathology.
1 Peninsula Childhood Disability Research Unit (PenCRU), University of Exeter Medical School, University of Exeter, Exeter, UK
2 Evidence Synthesis & Modelling for Health Improvement (ESMI), University of Exeter Medical School, University of Exeter, Exeter, UK
3 Health Statistics Group, University of Exeter Medical School, University of Exeter, Exeter, UK
4 National Institute for Health Research (NIHR) Applied Research Collaboration (ARC) South West Peninsula (PenARC), Exeter, UK
5 Paediatric Bladder and Bowel Care Team, Northern Devon Healthcare NHS Trust, Exeter, UK
6 Bladder & Bowel UK, Disabled Living, Manchester, UK
7 School of Allied Health Professions, Canterbury Christ Church University, Canterbury, UK
8 Children's Surgery, Chelsea and Westminster Hospital NHS Foundation Trust, London, UK
9 Evelina London Children’s Hospital, Guy’s and St Thomas’ NHS Foundation Trust, London, UK
* Corresponding author Email: christopher.morris@exeter.ac.uk
† Co-primary authors
Co-primary authors
Declared competing interests of authors: Nicholas Madden, June Rogers, Davina Richardson and Claire Lindsay are or have been members of the Paediatric Continence Forum (PCF), an independent multidisciplinary group of health-care professionals campaigning for better care of bladder and bowel problems in children and young people. Anne Wright was previously a member of, and is currently an honorary consultant (on an ad hoc basis) to, the PCF. We declare that (1) the PCF has commercial members who support its work: Coloplast UK Ltd (Peterborough, UK), Ferring Pharmaceuticals (Saint-Prex, Switzerland), Kimberly-Clark Europe Ltd (Reigate, UK), Norgine Pharmaceuticals Ltd (Norgine B.V., Amsterdam, the Netherlands), and Essity UK Ltd (formerly SCA Hygiene Products Ltd; Stockholm, Sweden); (2) commercial partners have no input into PCF documents; (3) members of the PCF are eligible for honorarium and travel expenses for PCF activities, although not members all apply for reimbursement. June Rogers and Davina Richardson are or have been employed by the charity Disabled Living, which received unrestricted funding grants from the following organisations to support the work of the charity: Ferring Pharmaceuticals, Ontex (Aalst, Belgium), TENA (Stockholm, Sweden), iMEDicare (Watford, UK) and INNOVO (Atlantic Therapeutics, Galway, Ireland). The company Coloplast Ltd gave a donation in 2017 to Disabled Living to support a Bowel Award Prize. Disabled Living runs conferences and study days throughout the year that are supported through payments made by a range of companies to exhibit. June Rogers is a member of the NHS England Excellence in Continence Care Programme Board and is the Paediatric Advisor for the Association for Continence Advice. Davina Richardson is on the Executive of the Association for Continence Advice, is editor of its newsletter, and is a member of its education and conference organising groups (there is no financial gain for this). Anne Wright is General Secretary to the Board of International Children’s Continence Society, but receives no compensation or commercial gain). Anne Wright is also a member of the Drug and Safety Monitoring Board for Astellas (Astellas Pharma Inc., Tokyo, Japan) regarding trials of Mirabegron in children; compensation payments for this work are made to the Departmental Renal Research Fund. Lecture fees from Ferring Pharmaceuticals are paid to the Departmental Renal Research Fund. Anne Wright is involved in research funded by the British Kidney Patient Association. She is president of the Professional Advisory Committee for ERIC (The Children’s Bowel and Bladder Charity), but receives no compensation or commercial gain. Julia Melluish was a member of National Institute for Health Research (NIHR) Health Technology Assessment (HTA) Prioritisation Committee C (Mental Health, Women and Children’s Health) (2018–20) and is a member of the HTA Prioritisation Committee A (Out of hospital) (2020–present). Eve Hutton was a member of the NIHR HTA Mental Health, Women and Children’s Health Panel (2017–18) and is a member of the HTA Prioritisation Committee A (Out of Hospital) (2017–21). Rob Anderson was a member of NIHR Health Services and Delivery Research Researcher-Led Panel (2016–19). Jo Thompson Coon is a member of the NIHR HTA General Committee (2019–present). Stuart Logan, Christopher Morris, Jo Thompson Coon, Rob Anderson, Susan Ball, Helen Eke, Harriet Hunt, Morwenna Rogers and Rebecca Whear have previously been or are currently funded or supported by the NIHR Applied Research Collaboration South West Peninsula.
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