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There is considerable uncertainty and variation between hospitals in terms of the policies, systems and practices for children with learning disabilities.

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Kate Oulton 1,*, Jo Wray 1, Charlotte Kenten 1, Jessica Russell 1, Lucinda Carr 2, Angela Hassiotis 3, Carey Jewitt 4, Paula Kelly 1, Sam Kerry 1, Irene Tuffrey-Wijne 5, Mark Whiting 6, Faith Gibson 1,7

1 Centre for Outcomes and Experience Research in Children’s Health, Illness and Disability, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK
2 Brain Directorate, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK
3 Division of Psychiatry, University College London, London, UK
4 UCL Knowledge Lab, UCL Institute of Education, University College London, London, UK
5 Faculty of Health, Social Care and Education, Centre for Health and Social Care Research, Kingston University and St George’s, University of London, London, UK
6 School of Health and Social Work, Centre for Research in Public Health and Community Care, University of Hertfordshire, Hatfield, UK
7 School of Health Sciences, University of Surrey, Guildford, UK
* Corresponding author Email: kate.oulton@gosh.nhs.uk

Declared competing interests of authors: Angela Hassiotis is a member of the National Institute for Health and Care Research (NIHR) Health Technology Assessment Commissioning committee (2018 to present). Kate Oulton is a seconded to the NIHR 70@70 Nurse Research Leader programme.

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